Alzheimer’s Society lights up Piccadilly!
When grappling with dementia, it’s common to feel a sense of loss, as if we’ve prematurely lost our loved ones even though they are physically present. This perception can often overshadow the fact that individuals with dementia are very much alive and continue to hold value.
Phrases like “The person you’re grieving for is still sitting opposite you at the kitchen table” can unintentionally imply that those with dementia are already lost to us, diminishing their ongoing presence and the joy and meaning they can still bring to relationships.
Although dementia alters how individuals interact with the world, it does not erase their essence. Recognizing and appreciating their continued presence is crucial. It’s important to cherish every moment, as I did with my grandmother despite her memory loss, understanding that she remained a vital part of my life.
Educational resources are available to help caregivers and facility staff better understand and respect their loved ones with dementia. These tools offer strategies to engage positively with those affected by dementia, focusing on their strengths and capabilities to enhance their quality of life and ensure they are valued and respected throughout their journey.
By focusing on the person and not just the disease, we foster a supportive and understanding environment that not only improves the quality of life for those with dementia but also supports caregivers by emphasizing connection and hope.
Exploring Further Support
While the journey of caregiving for someone with dementia can be challenging, it’s important to remember you’re not alone. Numerous organizations offer a wealth of resources to support caregivers. Whether you’re looking for emotional support, practical caregiving tips, or educational materials, these resources can provide invaluable assistance:
- Alzheimer’s Association: Comprehensive support including support groups, a 24/7 helpline, and educational materials. Visit Alzheimer’s Association
- Alzheimer’s Foundation of America: Access to webinars, support groups, and a free memory screening tool. Visit AFA
- Family Caregiver Alliance: Tailored resources focusing on the needs of family caregivers, including policy advocacy and educational materials. Visit Family Caregiver Alliance
- National Institute on Aging: Guides on Alzheimer’s, related dementias, and caregiving strategies. Visit NIA
- Dementia Friendly America: Tools and resources to help communities support individuals with dementia and their caregivers. Visit Dementia Friendly America
- Teepa Snow’s Positive Approach to Care: Training and resources emphasizing a positive and respectful approach to dementia care. Visit Teepa Snow
- Project Lifesaver: A program that equips individuals who may wander with a personal transmitter. Visit Project Lifesaver
- The Lewy Body Dementia Resource Center: Specific resources and support for Lewy Body Dementia. Visit LBD Resource Center
- CaringKind: Support and resources for Alzheimer’s and dementia caregivers, specific to New York. Visit CaringKind
- The Rosalynn Carter Institute for Caregivers: Supports caregivers through advocacy, education, and public awareness. Visit RCI
These resources are designed to empower you and enhance your ability to care for your loved one with dignity and respect. Accessing these tools can help you navigate the complexities of dementia caregiving with more confidence and less stress.
